As I talk to people in the medical field, and who have been through situations similar to our's, I am finding out just how rare our circumstances are. Not many women choose to continue pregnancies knowing that the outcome will be fatal to their child, and because of that, there is not a lot of information or support readily available. However, I have found a couple of EXCELLENT resources that I just feel so blessed by. One of those organizations is called String of Pearls...
I came home last night after a very tiring 10+ hour day. It was a good day, but very late and very tiring. I was so thrilled when I saw the big box on my kitchen counter and I knew right away who it was from! There is a wondeful, amazing organization called String of Pearls. It is an online organization that offers support to women who are carrying to term despite a fatal prenatal diagnosis. I have been in email contact with the founder of the organization, Laura. She offered to send me a memory kit, filled with things to help me make memories with Whitney after she is born. There are packets of 3D gel so that we can make a 3-dimensional mold of both her hands and her feet; there's a little package of Sculpey clay for us to make hand and foot imprints; a big ceramic ornamet with paint and paintbrush for us to put her footprints and handprints on.... then we just take it to one of the pottery places and have it fired! She also sent a teeny hat for Whitney, a photo album, a journal and devotional book for me, and some wild mint tea, which will help decrease my milk supply and hopefully ease some of the physical pain that comes with that. She also gave me some great suggestions for other ways to make memories with Whitney... buy a blanket both for her and for me (I am going to keep the one my sis gave her, then Sean and I are going to get one that she can be wrapped in and that will stay with her), bring an ink pad so we can stamp her footprints in the front of our Bibles (I LOVE this idea!), and make matching mom and daughter bracelets. Words cannot express my gratitude to Laura and her heart for women like me. Afterall, she knows how I feel better than most people, because she lost her daughter, Pearl right after she was born. She sent all of those things to me completely free of charge. Laura has also put me in contact with a woman who has lost her daughter to Triploidy... it is so rare to go this far in a pregnany with triploidy, so it has really helped to talk to someone else who has been through something similar. You can check out her website here... String of Pearls.
Thanks so much for sharing information about this organization! I would love to have known about them when I carried our anencephalic baby to term twelve years ago. I'm thrilled to hear about a ministry like this.
ReplyDeleteShey I am so thrilled that you have found this ministry! What great ideas they have. I also love the footprint in the Bible idea!What a sweet reminder. They have such an awesome ministry! You, Sean and Whitney are in my prayers.
ReplyDeleteGod is so good - and I'm so blessed by your faithful obedience to His plan for you. I have a feeling Whitney's life - even if it's only a few hours - will have more impact and bless more people than most of us who live 70 or 80 years. I love you all three and pray for you daily.
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