What an amazing blog; a real tribute to Whitney's legacy! I'm so amazed watching the Spirit in your faces during an unbelievable trial. I have come across other blogs with similar stories (although all are very unique of course). One is from a girlfriend I attended MOPS with...if you're interested her blog is http://casadeperkins.blogspot.com/ and her story can be found under the section called Baby Paul. The You tube video of the birthing room and the journal entries are Simply Amazing! I pray but nothing but the best for you and the future of your growing family. God Bless, Meredith
I stumbled upon your blog through baby center. I won't go into too many details about my story...suffice it to say it's about exactly the same as yours. Except mine doesn't have a Triploidy diagnosis...but something similar. Our baby boy was born on April 1, 2010. He weighed a mere 12 ounces. We miss him everyday. I'm so sorry for your loss. I hope all of our little angel babies are playing together in Heaven.
What an incredible story. You seem like very strong people. I came across your blog when looking something up on babycenter, before I new it I had read your whole blog. I am amazed. I don't know you at all and I completely crying reading your story. I am so sorry to hear about your sweet little angel. I hope the future holds much joy and happiness for your family.
I just read your entire blog. You are truely an amazing couple. You have done a wonderful job honoring Whitney. I went to church on easter and it killed me. Sent me into a month long depression. Haven't been back. Normally I go with my mother on mothers day, last year I was pregnant. They always ask the mothers to stand. I do not think I can bare the pain.
I have just read your entire website. What a tribute to Whitney. I too lost my baby boy Gabriel born at 21 weeks on November 13, 2002 from Triploidy. Although it gets easier, it is never gone away. My thoughts and prayers are with you especially this Mother's Day weekend.
Thats so sad! Really, why would god not let you hold your baby girl when she was alive? God sets a path for us all, but sometimes that path is honestly (for the sake of my parents not killing me ill put it this way) messed the heck up. But, i guess its all for our good. Hope yall will one day be able to hold yalls own precious little baby in your arms. I will definately put that code on my site!
Hello, I just found out 1.5 weeks ago that our baby girl (21 weeks) has triploidy... It is all very overwhelming.. was wondering if I could get your email address and make contact with you. Fiona
Hi there, I think I found your blog through babycenter. I was lurking the loss board around after losing my daughter, Madelynn (at 36 weeks), in February. I just wanted you to know that I've appreciated reading your posts and how you glorify God through the storm. I've shared a very similar response to our loss as you do to yours. We have felt the comfort and peace that can only come from a relationship with Jesus. I also started a blog to share with family and friends (www.madelynnlorene.blogspot.com). It is such a blessing to know how our babies lives have touched so many people and that our responses help others see the love of God. Thank you for sharing your story as it helps to hear the story of another mom who knows what it's like to lose a baby. Blessings to you, Denise
Shey, I had been reading your 365 blog as well but no longer have access to it. I would very much like to be re-instated if possible. I have been so incredibly impressed with your courage, your "realness" in sharing..I feel I have learned much from you and, through you, believe my own faith walk has been strengthened. Thank you for adding my "brick" to your blog.... I do think of you and Sean and Whitney so often. I would like to be able to invite you to my Shutterfly website also so you can get to know me a bit, too, but I would need your email address for that. You are an amazing young woman! Blessings, Linda
I came to your blog through my cousin Amanda, angel Layla Rae's mom. Thank you for honoring Amanda and Layla on her birthday. Thank you also for sharing your story. My niece Nevaeh Rae Wallace passed away 14 months ago at the age of 14 months. It is amazing how precious life is and even though at times it may be short it can impact others incredibly for a lifetime. Thank you for sharing Whitney's story and for being incredible parents to love her and carry on her legacy well. Praying the Lord's blessings upon you as you continue to walk through this season of grief. In Christ, Jaime
Shey, Thank you for sharing the beauty that is your daughter Whitney. My prayers go out to both of you that you can hold another child in your arms as well. I too lost my son, Hannan, to triploidy, although at 17 weeks. I haven't been able to do as much to memorialize him, and you've quite inspired me. I know our babies are in heaven, looking at God and wondering when their mommy will come home to them. Thank you for sharing your strength, faith and desire for God.
Hi my name is Emily Holbert. I am so so sorry to hear about your loss. On April 9, 2009, my little daughter Claire Marie, went to Heaven. I was 37 weeks and her precious little heart stopped beating. There are more details to how that happened but it would be better to tell you at another time. It has been a hard year, but with my wonderful church family, Northside Christian Church, I have been able to get to this point. When I lost Claire, a frien told me that Claire was chosen by God because she was just too beautilfu to stay on earth. I think that Whitney Jill was too. They are in Heaven together now having the time of their lives. One day we will be ablet o see them again. God Bless, Emily
I just read your blog on your delivery and I actually brought tears to my eyes. It is so very similar to mine. I truely know how you feel. It is a hard part of life, but I know that these things happen for a reason. I was truely blessed to be able to read your story. And I hope that if there is anything that I can do to help you that you will let me know. I am feeling mixed emotions again over m y daughter and it always helps to talk to someone who knows what I am feeling. Emily
What a beautiful story! God is good. So proud of the glory you gave God. Please read my blog if you get a chance. www.ourgift-2010.blogspot.com You and your husband are an inspiration!
Just wanted to let you know I am continually thinking of you and praying for your continued comfort. I come to your blog often to just read how you are doing and to know more specifically how I can pray for you. I am still working on the Scripture book (it got packed away during the move last month and now that we're in TN I need to unearth my crafting supplies so I can finish it up and send it to you soon!). Praying God's hand of comfort on you . . .
I just wanted to say thank you for sharing your story. My husband and I found out in July that the baby girl we were expecting has triploidy. Your blog has helped me in so many ways. This is definitely the hardest thing we have experienced. Thank you again for sharing. There is so little information out there. Stacey
Thank you for sharing your story - of your daughter and your walk with God. Our walk with God is certainly not all roses - but even in the painful times there are roses. I am blessed to be the mother of 3 sons (first I carried in my heart - adoption and the second 2 I carried the traditional way). I have also experienced 2 miscarriages. Each of those 2 times I was pregnant was such a joy despite ending before I was ready. I am sorry more than I can say that things did not happen how you had hoped and dreamed. I am so glad that you had the joy of Whitney. I will pray for you.
I happened upon your blog purely by chance and am glad I did. Your story is so inspirational. I read your blog from cover to cover twice! My husband and I have lost three children ourselves and now run a public charity called Hiring for Hope and we have several free services for couples that have lost a child and or are experiencing obstacles to building their families, including a virtual Brave Little Soul Beach Playground. I wanted to invite you to check us out and invite you to add your precious angel baby to the beach playground along with ours. www.hiringforhope.org
Little Whitneys story brought tears to my eyes as I remember my baby boy Jamari, who I gave birth to just 12 days ago, at 4 months along after he was diagnosed with triploidy..I am wondering if you have a facebook account or email address so that I could get in contact with you?? Your website is beautiful, you have done your baby girl so proud. Kate
I found your blog through Babycenter, and I just wanted to tell you that your beautiful princess and I share a birthday. :) Your faith is incredible, and I pray for God's blessings on your family! In His love, Sarah
I will be with you guys in prayer on the 9th. God bless you and I pray for His comfort and peace upon you, especially as you attend the Remember L.A. event. I am hopeful that the event will be an uplifting and faith building experience for you both. God's peace.... -Mark
Thank you so much for sharing your story. I lost my baby to triploidy nearly 3 years ago and it is still difficult, especially on her birthday, holidays, and original due date. I will keep you and Whitney in my thoughts.
Today I was thinking of my baby who was born in 1982 at 29 weeks -- Erin Louise. She had complete triploidy. Unlike your baby, she was quite abnormal looking, even taking into account her early entry into the world. It was the hardest thing I have ever endured and, in 1982, no one was prepared to deal with this anomally, so I was not taken care of like you were. I dealt with it the best I could, though, and two years later I had twins -- healty boy and girl. I will NEVER forget my little Erin. When I had my wedding ring changed after 25 years of marriage, I had 5 diamonds put in it -- one represented Erin, the other two were my twins, the larger two were my husband and I. Our family of 5! I love how you remembered your daughter. I wish I had had the support you did, but more is known about triploidy now. I wish that I could have walked with you on October 9th, but today is October 11th and I just discovered your blod. Thank you for the post! Our babies are in Heaven together!
I don't remember if I left a comment earlier or not...The last few weeks have been a blur. We lost our baby at 12 weeks, 1 day. Baby Eden left my womb on October 15, 2010 (which I have now learned is a National Remembrance Day). Thank you for sharing your story in your blog. It's amazing to me how much I relate to the feelings and emotions you have written about. Whitney will be remembered. And I pray Eden is remembered as well. Thanks again:)
Amazing story. Thanks so much for your inspiring faith! I'm Sean's childhood friend, and it's great to see where he is today. Stay strong, and know that God Never Fails!
Hey I just found this site. My son was born with Triploidy. I am going to leave a message then go read your story. I know first hand about this and how rare it is. I would love to share my story with you. Never really met anyone that gone through this. My son's birthday is comming up Soon. Seth Issaiah and even though it is 15 years this year I still love and miss him so much. God Bless you and off to read your story. Our Angels are together in Heaven.
Thank you. Your story is amazing and your pregnancy now gives me hope. I am older than you are so I am afraid of never being blessed with another healthy baby again. I have a two yr old DD and was so excited to give her a sibling, but I found out at my 11-12 week u/s that my baby's heart had stopped. It was a confirmed case of Triploidy XXY. I was beyond devastated. Since then, I have had another miscarriage, due to Trisomy 20. I am terrified I will never get to experience the joy of having another healthy baby again. Best wishes to you. I wish we had not had to cross paths at all...but I am glad I found your blog on babycenter. Thank you.
I have been praying that God would help me to understand (even just a little) what a mother could be thinking or feeling as she deals with her baby being taken to heaven before she is ready. This blog is an answer to my prayer! I am a L&D nurse that wants to be there for the families that have also expericenced their babies going to heaven before they anticipated. Thank you so much for allowing me to have access to this beautiful blog about your experience as a mom who gave birth to a beautiful baby girl Whitney Jill who is now in heaven. God bless you and your family. Hugs. Candy Zaranyika
Wow, I feel so privileged to have been able to read your story. I too lost my baby to stillbirth due to a blood disease called APS which I didn't know I had until after it was too late. I had him January 8th 2011 and have definitely come to terms with the fact that Hayden was always God's...And He took Hayden because He needed him. When I came to leave a comment, I saw my very own nurse comment on here above and I knew it was a sign that I needed to touch base with you. I started a support group here in Fresno for mommies like us who have lost their babies to come together for fellowship. Please feel free to join us on Facebook at Face2Face Fresno/Clovis. Take care Kaila
What a beautiful blog! I got the link through a friend's facebook page. I'm another woman who went through an infertility journey, but did not have to experience the horrors of a loss. I am now about 25 weeks pregnant (so just a few weeks behind you I think!) and I'm just now letting myself feel excited because I've been so scared the whole pregnancy. You show such grace and peace- it is truly amazing. I'm so glad you got your rainbow baby, but wish you and other women never had to feel the pain of a loss. I know that my battle with infertility has changed me forever- in good ways and bad- and I have tried to grow from it. You are a role model of how to turn despair and grief into passion, compassion, and strength. Congratulations on both your little girls- the one watching over you and the one growing in you.
Thank you for your wonderful blog. My husband and I just lost our little baby girl Ziva Marie on Feb 15. Her heart stopped beating and they induced labour. She had full triploidy. I was 22 weeks along. We were blessed with a great hospital experience and they took her footprints for us and we were able to hold her. It is very hard to accept that my baby is girl is gone;but, it is comforting to know that she is in god's arms.
First let me say how sorry I am for your loss and thank you for being brave enough to put your story out there. My sisters youngest son was recently diagnosed with having triploidy but it wasnt until he was 13 months old. when he was around 10 months old he was admitted to the childrens hospital in spokane washington and was thought to have had Williams Disease which limits the child's ability to grow along with multiple other birth defects. Again I am very sorry for your loss of your beautiful Whitney.
i know how you are feeling 4 years ago today (march 21 2007) I lost my baby girl Angel Christine to this. like you I had never heard of it before and it was not even mentioned until after she was born and laid to rest. I gave birth to her at 32 weeks and she weighed 1 pound 7 ounces 12 inches long with a head full of black hair. I was scared to death that if i was to ever get pregnant again this would happen. what I didnt know at the time I found out what it was she passed from (10 weeks postpartem) I was already pregnant again. I went on to give birth to a healthy baby boy 9 months and 3 weeks to the day she was born and also another son 20 mths and 2 days later who is also healthy. I just hope when people read this they will understand you can go on and have a healthy pregnancy after a loss.
I had a baby boy in 1998 who also had triploidy. I delivered him at 29 weeks and he weighed 2lb.12 oz. I had eclampsia and almost died with his pregnancy. We did not know of his condition until his birth. We had never heard of it. I allready had two boys who were 2 and 4 at the time and they had been fine.He was born with severe birth defects and only lived on machines until he was six days old and we took him off everything because back then, 13 years ago, they did not know as much and just kept wanting to run tests on him. He died when he was six days old. I went on in the following year to have two miscarriages.My husband and I had some genetic tests done but were cleared.Everyone said to just give up but I went on to have a daughter in 2000 and another in 2002.I am just now starting to find info. and stories like my own story. Thank you for that.
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I too went through a triploidy preganancy almost 2 years ago. When we found out we were devastated. We too decided it was not our decision to stop her life. It was the greatest choice we made. We got to hold her and see her sweet face and tiny body (12 ounces and 12 inches long). But she was beautiful and I feel lucky to have gotten the chance to hold her and carry her inside me for the 34 weeks I did. We named her Bella Grace (Beautiful Blessing) because that is what she was to us. Your story is a great one and I am glad you shared it. It is nice to read the story of someone who has gone through the same thing and know we are not alone. Thank you.
I am currently 19 weeks pregnant with our little girl who has Triploidy. I came across your site while researching the syndrome. Your blog has been very encouraging to me. Our God is amazing and I am so glad he has a perfect plan for our lives! He is the God of miracles and I'm praying we will have the opportunity to spend time with our daughter like you. Thank you for your testimony and sharing your experience with us all!
Thank you for your story. Two days after finding out that my baby girl had Triploidy her heart stopped beating. Bella Grace was born at 21 weeks, on Nov. 10, 2011. She weighed 2.8 ounces and was 9 inches long. I couldn't wait to meet her and during the 41 hour labor God granted such a peace. Your story gives me hope that Lord willing soon I will have other children. Until then I will focus on all the good times and the blessing that Bella was in our lives. Thank you so much!
Just wanted to update and let you know our little Madilyn Grace was born November 18, 2011. She weighed 3.5 ounces and was 7 inches long. She was beautiful. Can't wait till we can meet our little ones in heaven!
Thank you for your blog. Our baby has a preliminary FISH diagnosis of triploidy. We're awaiting full results next week. My doctor has been incredibly nice and compassionate and the perinatologist told us that he and his wife also had a baby with a fatal diagnosis that they chose to carry as long as possible, so they both are supporting us in our decision to continue on with carrying our little Zoe Celeste. I think in some ways it's been a little easier for us because we already have a healthy little boy after 13 years of trying, but we're still devastated.
As I'm sitting at work (I work on an ambulance that's why I'm here so late) I'm trying not to cry while reading your blog. I lost my precious Zachariah to triploidy November 22, 2011. Seeing death everyday in my job and having to be the strong one all the time that's the role I took with the death of my precious little boy. It's hard on me and ry everyday to loose our first born son. What really kills me is when our beautiful 2 1/2 year old daughter pats my belly and says "baby" and tries to talk to him. It was the hardest thing to tell her "no there's no baby anymore, god needed Zachariah more then we did." it's nice to know we're not the only ones going through this. We were also blindsided by the triploidy diagnosis and told the best thing to do is terminate. God took Zachariah home a week later. I like you cannot wait to meet my precious baby and I think we can both feel some peace in knowing our babies are not suffering and have no disabilities where they are. They are as perfect as they appeared in our eyes not the medical aspect of it. Zachariah like your Whitney was perfect. <3 thank you for sharing your story.
I just found your site today. My son and daughter-in-law recently had their first child and while in the Neonatal Unit met a couple whose little girl was born with Triploidy. She's an amazing blessing and her parents are building wonderful memories with their precious treasure while she is with them. They have an older daughter who needs prayers as there is no sufficient way for her to understand all of this. God Bless.
Dear both, I came across your page while researching a lecture on chromosome imbalances that I am giving to medical students (I'm a doctor who specialises in genetics). I am not sure what made me look at your page because I was looking for facts and figures but I am glad I did. I am in awe of your faith, your love, your compassion. Your site made me cry, which is unusual, given what I see every day at the hospital. It reminded me of how good God is and reminded me to ask for his help in shouldering my very small burdens. It has inspired me to commit a random act of kindness- not sure what yet, but I'll let you know when I do it. But more importantly it reminded me of what parents go through before, during and after they seem me and my colleagues and how it does not end with the end of a pregnancy or the death of a child. Thank you for your lovely site in memory of your lovely daughter. May God continue to bless you. Annie
Hello, I came upon your site accidentally and I'm so glad that I did. Your story really touched me because, like others, I lost a child who had chromosomal triploidy. Mine was 14 years ago. Her name was Grace and she was a twin. Her brother Michael is an incredible blessing and joy in my life and will forever have an angel watching over him. He tells me to this day how much he wishes she were here for him. Your information was wonderful, so much more than I had available to me 14 years ago. Thank you for sharing your story...it helps even all these years later:)
Thank you for sharing your story about Whitney's birth. We lost our first child, a little boy, in the 24th week of pregnancy. At the time (1979), it was called a miscarriage and I wasn't given the opportunity to hold him, or even see him. I am so glad that the medical industry know understands how important it is for parents to see and hold their baby and to say hello and goodbye. I don't think you realize also home much it helps people like me to be able to share in your experience. It helps to imagine what that time would have been like if we had had the time to hold our baby and have a funeral for him, to say goodbye properly.
I just found this blog and what an amazing story - thank you so much for posting your beautiful story for others to read and take comfort in. I was pregnant with my first (and only) baby in 1997. At 17 weeks I had an amniocenteses test as a precautionary measure - I had no reason to believe anything was wrong. I will never forget that day as long as I live, the Dr carrying out the procedure told me that all was not well and this was not a viable pregnancy. I was devastated to say the least, my husband passed out during the test, shocked by what the Dr was saying. My husband & I went home and waited for the results which came 3 days later - our baby was a triploidy baby and the recommendation a termination as soon as possible. I agreed on the basis that the baby would not survive and that we should move forward as soon as possible and try again - a decision I deeply regret. We were in Germany at the time (military people) and I was admitted to hospital at 18 weeks and given drugs to start contractions - they were insistent I had to give birth naturally rather than have a D&C. Before the drugs were administered I was whisked off for a detailed ultrasound where I could see my baby moving and hear his incredibly strong heart beat - I was about to kill him, I felt awful and have never understood why the Drs did that - to what end other than their own curiosity! It took around 18 hours for our baby boy to be born and it was very painful and slow at the end, they were about to take me into theatre for a D&C instead as things were not progressing quickly enough but then I asked to go to the toilet where my baby was born, not a pleasant experience alone in a toilet. I was then taken away to clear the rest of my womb and the baby was taken away and they didn't let me see him. After the surgery we asked to see our baby, despite being advised not to, and he was brought to us in a petri dish like some surgical procedure had just taken place. He looked very small with a very small tummy and large head but otherwise perfect. They did take a photo for us but other than that we were sent home, no comforting words no counselling, no suggestion we should name him, nothing. I never conceived again and even tried IVF but eventually gave up and decided that it was not meant to be. I have learned to cope but will NEVER get over the experience and will always regret not having had more children but also the fact that nobody acknowledges i di have a baby boy - not even my caring family really. I also deeply regret not having continued with the pregnancy - at least then I could have had our baby acknowledged as such (the only baby I ever had)and been treated perhaps with a little more humanity. My husband didn't feel the need but secretly, I called him Thomas, my only baby. I just though my story might help others to make the decision whether or not to terminate, termination wasn't the right choice for me.
Thank you for the inspiration. My darling daughter's baby girl just died in utero yesterday with triploidy and she is waiting to deliver. She was 6 months along. I live in Michigan, but am in Alabama where my daughter and son in law live . . just waitng, waiting waiting, while my heart breaks further. God bless you and Sean for this glorious tribute to your baby, Whitney. My granddaughter now joins her in Heaven.
Thank you for sharing your story. I, too chose to blog to help myself cope with our triploidy tragedy. We chose to terminate through heavy hearts and tear filled eyes. It was the right choice for us and you're right...it's such a personal decision that each family has to make on their own. I am so sorry for your loss but admire your strength.
What an amazing blog; a real tribute to Whitney's legacy! I'm so amazed watching the Spirit in your faces during an unbelievable trial. I have come across other blogs with similar stories (although all are very unique of course). One is from a girlfriend I attended MOPS with...if you're interested her blog is http://casadeperkins.blogspot.com/ and her story can be found under the section called Baby Paul. The You tube video of the birthing room and the journal entries are Simply Amazing! I pray but nothing but the best for you and the future of your growing family. God Bless,
ReplyDeleteMeredith
I stumbled upon your blog through baby center. I won't go into too many details about my story...suffice it to say it's about exactly the same as yours. Except mine doesn't have a Triploidy diagnosis...but something similar. Our baby boy was born on April 1, 2010. He weighed a mere 12 ounces. We miss him everyday. I'm so sorry for your loss. I hope all of our little angel babies are playing together in Heaven.
ReplyDeleteWhat an incredible story. You seem like very strong people. I came across your blog when looking something up on babycenter, before I new it I had read your whole blog. I am amazed. I don't know you at all and I completely crying reading your story. I am so sorry to hear about your sweet little angel. I hope the future holds much joy and happiness for your family.
ReplyDeleteI just read your entire blog. You are truely an amazing couple. You have done a wonderful job honoring Whitney.
ReplyDeleteI went to church on easter and it killed me. Sent me into a month long depression. Haven't been back. Normally I go with my mother on mothers day, last year I was pregnant. They always ask the mothers to stand. I do not think I can bare the pain.
I have just read your entire website. What a tribute to Whitney. I too lost my baby boy Gabriel born at 21 weeks on November 13, 2002 from Triploidy. Although it gets easier, it is never gone away. My thoughts and prayers are with you especially this Mother's Day weekend.
ReplyDeleteThats so sad! Really, why would god not let you hold your baby girl when she was alive? God sets a path for us all, but sometimes that path is honestly (for the sake of my parents not killing me ill put it this way) messed the heck up. But, i guess its all for our good. Hope yall will one day be able to hold yalls own precious little baby in your arms. I will definately put that code on my site!
ReplyDeleteI just wanted to check in and see how you are doing? I miss your blog posts. Praying for your family! xoxo Jennifer
ReplyDeleteHello,
ReplyDeleteI just found out 1.5 weeks ago that our baby girl (21 weeks) has triploidy... It is all very overwhelming.. was wondering if I could get your email address and make contact with you.
Fiona
Hi there,
ReplyDeleteI think I found your blog through babycenter. I was lurking the loss board around after losing my daughter, Madelynn (at 36 weeks), in February. I just wanted you to know that I've appreciated reading your posts and how you glorify God through the storm. I've shared a very similar response to our loss as you do to yours. We have felt the comfort and peace that can only come from a relationship with Jesus. I also started a blog to share with family and friends (www.madelynnlorene.blogspot.com). It is such a blessing to know how our babies lives have touched so many people and that our responses help others see the love of God. Thank you for sharing your story as it helps to hear the story of another mom who knows what it's like to lose a baby.
Blessings to you,
Denise
Shey,
ReplyDeleteI had been reading your 365 blog as well but no longer have access to it. I would very much like to be re-instated if possible. I have been so incredibly impressed with your courage, your "realness" in sharing..I feel I have learned much from you and, through you, believe my own faith walk has been strengthened. Thank you for adding my "brick" to your blog....
I do think of you and Sean and Whitney so often. I would like to be able to invite you to my Shutterfly website also so you can get to know me a bit, too, but I would need your email address for that. You are an amazing young woman!
Blessings, Linda
I came to your blog through my cousin Amanda, angel Layla Rae's mom. Thank you for honoring Amanda and Layla on her birthday.
ReplyDeleteThank you also for sharing your story. My niece Nevaeh Rae Wallace passed away 14 months ago at the age of 14 months. It is amazing how precious life is and even though at times it may be short it can impact others incredibly for a lifetime. Thank you for sharing Whitney's story and for being incredible parents to love her and carry on her legacy well.
Praying the Lord's blessings upon you as you continue to walk through this season of grief.
In Christ, Jaime
Shey,
ReplyDeleteThank you for sharing the beauty that is your daughter Whitney. My prayers go out to both of you that you can hold another child in your arms as well. I too lost my son, Hannan, to triploidy, although at 17 weeks. I haven't been able to do as much to memorialize him, and you've quite inspired me. I know our babies are in heaven, looking at God and wondering when their mommy will come home to them. Thank you for sharing your strength, faith and desire for God.
Hi my name is Emily Holbert. I am so so sorry to hear about your loss. On April 9, 2009, my little daughter Claire Marie, went to Heaven. I was 37 weeks and her precious little heart stopped beating. There are more details to how that happened but it would be better to tell you at another time. It has been a hard year, but with my wonderful church family, Northside Christian Church, I have been able to get to this point. When I lost Claire, a frien told me that Claire was chosen by God because she was just too beautilfu to stay on earth. I think that Whitney Jill was too. They are in Heaven together now having the time of their lives. One day we will be ablet o see them again.
ReplyDeleteGod Bless,
Emily
I just read your blog on your delivery and I actually brought tears to my eyes. It is so very similar to mine. I truely know how you feel. It is a hard part of life, but I know that these things happen for a reason. I was truely blessed to be able to read your story. And I hope that if there is anything that I can do to help you that you will let me know. I am feeling mixed emotions again over m y daughter and it always helps to talk to someone who knows what I am feeling.
ReplyDeleteEmily
What a beautiful story! God is good. So proud of the glory you gave God. Please read my blog if you get a chance. www.ourgift-2010.blogspot.com
ReplyDeleteYou and your husband are an inspiration!
Just wanted to let you know I am continually thinking of you and praying for your continued comfort. I come to your blog often to just read how you are doing and to know more specifically how I can pray for you. I am still working on the Scripture book (it got packed away during the move last month and now that we're in TN I need to unearth my crafting supplies so I can finish it up and send it to you soon!).
ReplyDeletePraying God's hand of comfort on you . . .
I just wanted to say thank you for sharing your story. My husband and I found out in July that the baby girl we were expecting has triploidy. Your blog has helped me in so many ways. This is definitely the hardest thing we have experienced. Thank you again for sharing. There is so little information out there.
ReplyDeleteStacey
Thank you for sharing your story - of your daughter and your walk with God. Our walk with God is certainly not all roses - but even in the painful times there are roses. I am blessed to be the mother of 3 sons (first I carried in my heart - adoption and the second 2 I carried the traditional way). I have also experienced 2 miscarriages. Each of those 2 times I was pregnant was such a joy despite ending before I was ready. I am sorry more than I can say that things did not happen how you had hoped and dreamed. I am so glad that you had the joy of Whitney. I will pray for you.
ReplyDeleteI happened upon your blog purely by chance and am glad I did. Your story is so inspirational. I read your blog from cover to cover twice! My husband and I have lost three children ourselves and now run a public charity called Hiring for Hope and we have several free services for couples that have lost a child and or are experiencing obstacles to building their families, including a virtual Brave Little Soul Beach Playground. I wanted to invite you to check us out and invite you to add your precious angel baby to the beach playground along with ours. www.hiringforhope.org
ReplyDeleteLittle Whitneys story brought tears to my eyes as I remember my baby boy Jamari, who I gave birth to just 12 days ago, at 4 months along after he was diagnosed with triploidy..I am wondering if you have a facebook account or email address so that I could get in contact with you?? Your website is beautiful, you have done your baby girl so proud.
ReplyDeleteKate
I found your blog through Babycenter, and I just wanted to tell you that your beautiful princess and I share a birthday. :)
ReplyDeleteYour faith is incredible, and I pray for God's blessings on your family!
In His love,
Sarah
I will be with you guys in prayer on the 9th. God bless you and I pray for His comfort and peace upon you, especially as you attend the Remember L.A. event. I am hopeful that the event will be an uplifting and faith building experience for you both. God's peace....
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Thank you so much for sharing your story. I lost my baby to triploidy nearly 3 years ago and it is still difficult, especially on her birthday, holidays, and original due date. I will keep you and Whitney in my thoughts.
ReplyDeleteToday I was thinking of my baby who was born in 1982 at 29 weeks -- Erin Louise. She had complete triploidy. Unlike your baby, she was quite abnormal looking, even taking into account her early entry into the world. It was the hardest thing I have ever endured and, in 1982, no one was prepared to deal with this anomally, so I was not taken care of like you were. I dealt with it the best I could, though, and two years later I had twins -- healty boy and girl. I will NEVER forget my little Erin. When I had my wedding ring changed after 25 years of marriage, I had 5 diamonds put in it -- one represented Erin, the other two were my twins, the larger two were my husband and I. Our family of 5! I love how you remembered your daughter. I wish I had had the support you did, but more is known about triploidy now. I wish that I could have walked with you on October 9th, but today is October 11th and I just discovered your blod. Thank you for the post! Our babies are in Heaven together!
ReplyDeleteI don't remember if I left a comment earlier or not...The last few weeks have been a blur. We lost our baby at 12 weeks, 1 day. Baby Eden left my womb on October 15, 2010 (which I have now learned is a National Remembrance Day). Thank you for sharing your story in your blog. It's amazing to me how much I relate to the feelings and emotions you have written about. Whitney will be remembered. And I pray Eden is remembered as well. Thanks again:)
ReplyDeleteAmazing story. Thanks so much for your inspiring faith! I'm Sean's childhood friend, and it's great to see where he is today. Stay strong, and know that God Never Fails!
ReplyDeleteHey I just found this site. My son was born with Triploidy. I am going to leave a message then go read your story. I know first hand about this and how rare it is. I would love to share my story with you. Never really met anyone that gone through this. My son's birthday is comming up Soon. Seth Issaiah and even though it is 15 years this year I still love and miss him so much. God Bless you and off to read your story. Our Angels are together in Heaven.
ReplyDeleteThank you. Your story is amazing and your pregnancy now gives me hope. I am older than you are so I am afraid of never being blessed with another healthy baby again. I have a two yr old DD and was so excited to give her a sibling, but I found out at my 11-12 week u/s that my baby's heart had stopped. It was a confirmed case of Triploidy XXY. I was beyond devastated. Since then, I have had another miscarriage, due to Trisomy 20. I am terrified I will never get to experience the joy of having another healthy baby again.
ReplyDeleteBest wishes to you. I wish we had not had to cross paths at all...but I am glad I found your blog on babycenter. Thank you.
I have been praying that God would help me to understand (even just a little) what a mother could be thinking or feeling as she deals with her baby being taken to heaven before she is ready. This blog is an answer to my prayer! I am a L&D nurse that wants to be there for the families that have also expericenced their babies going to heaven before they anticipated. Thank you so much for allowing me to have access to this beautiful blog about your experience as a mom who gave birth to a beautiful baby girl Whitney Jill who is now in heaven. God bless you and your family. Hugs. Candy Zaranyika
ReplyDeleteWow, I feel so privileged to have been able to read your story. I too lost my baby to stillbirth due to a blood disease called APS which I didn't know I had until after it was too late. I had him January 8th 2011 and have definitely come to terms with the fact that Hayden was always God's...And He took Hayden because He needed him. When I came to leave a comment, I saw my very own nurse comment on here above and I knew it was a sign that I needed to touch base with you. I started a support group here in Fresno for mommies like us who have lost their babies to come together for fellowship. Please feel free to join us on Facebook at Face2Face Fresno/Clovis.
ReplyDeleteTake care
Kaila
What a beautiful blog! I got the link through a friend's facebook page. I'm another woman who went through an infertility journey, but did not have to experience the horrors of a loss. I am now about 25 weeks pregnant (so just a few weeks behind you I think!) and I'm just now letting myself feel excited because I've been so scared the whole pregnancy.
ReplyDeleteYou show such grace and peace- it is truly amazing. I'm so glad you got your rainbow baby, but wish you and other women never had to feel the pain of a loss. I know that my battle with infertility has changed me forever- in good ways and bad- and I have tried to grow from it. You are a role model of how to turn despair and grief into passion, compassion, and strength.
Congratulations on both your little girls- the one watching over you and the one growing in you.
Thank you for your wonderful blog. My husband and I just lost our little baby girl Ziva Marie on Feb 15. Her heart stopped beating and they induced labour. She had full triploidy. I was 22 weeks along. We were blessed with a great hospital experience and they took her footprints for us and we were able to hold her. It is very hard to accept that my baby is girl is gone;but, it is comforting to know that she is in god's arms.
ReplyDeleteFirst let me say how sorry I am for your loss and thank you for being brave enough to put your story out there. My sisters youngest son was recently diagnosed with having triploidy but it wasnt until he was 13 months old. when he was around 10 months old he was admitted to the childrens hospital in spokane washington and was thought to have had Williams Disease which limits the child's ability to grow along with multiple other birth defects. Again I am very sorry for your loss of your beautiful Whitney.
ReplyDeletei know how you are feeling 4 years ago today (march 21 2007) I lost my baby girl Angel Christine to this. like you I had never heard of it before and it was not even mentioned until after she was born and laid to rest. I gave birth to her at 32 weeks and she weighed 1 pound 7 ounces 12 inches long with a head full of black hair. I was scared to death that if i was to ever get pregnant again this would happen. what I didnt know at the time I found out what it was she passed from (10 weeks postpartem) I was already pregnant again. I went on to give birth to a healthy baby boy 9 months and 3 weeks to the day she was born and also another son 20 mths and 2 days later who is also healthy. I just hope when people read this they will understand you can go on and have a healthy pregnancy after a loss.
ReplyDeleteI had a baby boy in 1998 who also had triploidy. I delivered him at 29 weeks and he weighed 2lb.12 oz. I had eclampsia and almost died with his pregnancy. We did not know of his condition until his birth. We had never heard of it. I allready had two boys who were 2 and 4 at the time and they had been fine.He was born with severe birth defects and only lived on machines until he was six days old and we took him off everything because back then, 13 years ago, they did not know as much and just kept wanting to run tests on him. He died when he was six days old. I went on in the following year to have two miscarriages.My husband and I had some genetic tests done but were cleared.Everyone said to just give up but I went on to have a daughter in 2000 and another in 2002.I am just now starting to find info. and stories like my own story. Thank you for that.
ReplyDeleteLots of specialists tell that mortgage loans help people to live the way they want, just because they can feel free to buy necessary goods. Furthermore, various banks give credit loan for different persons.
ReplyDeleteI too went through a triploidy preganancy almost 2 years ago. When we found out we were devastated. We too decided it was not our decision to stop her life. It was the greatest choice we made. We got to hold her and see her sweet face and tiny body (12 ounces and 12 inches long). But she was beautiful and I feel lucky to have gotten the chance to hold her and carry her inside me for the 34 weeks I did. We named her Bella Grace (Beautiful Blessing) because that is what she was to us. Your story is a great one and I am glad you shared it. It is nice to read the story of someone who has gone through the same thing and know we are not alone. Thank you.
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ReplyDeleteI am currently 19 weeks pregnant with our little girl who has Triploidy. I came across your site while researching the syndrome. Your blog has been very encouraging to me. Our God is amazing and I am so glad he has a perfect plan for our lives! He is the God of miracles and I'm praying we will have the opportunity to spend time with our daughter like you. Thank you for your testimony and sharing your experience with us all!
ReplyDeleteThank you for your story. Two days after finding out that my baby girl had Triploidy her heart stopped beating. Bella Grace was born at 21 weeks, on Nov. 10, 2011. She weighed 2.8 ounces and was 9 inches long. I couldn't wait to meet her and during the 41 hour labor God granted such a peace. Your story gives me hope that Lord willing soon I will have other children. Until then I will focus on all the good times and the blessing that Bella was in our lives. Thank you so much!
ReplyDeleteJust wanted to update and let you know our little Madilyn Grace was born November 18, 2011. She weighed 3.5 ounces and was 7 inches long. She was beautiful. Can't wait till we can meet our little ones in heaven!
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ReplyDeleteThank you for your blog. Our baby has a preliminary FISH diagnosis of triploidy. We're awaiting full results next week. My doctor has been incredibly nice and compassionate and the perinatologist told us that he and his wife also had a baby with a fatal diagnosis that they chose to carry as long as possible, so they both are supporting us in our decision to continue on with carrying our little Zoe Celeste. I think in some ways it's been a little easier for us because we already have a healthy little boy after 13 years of trying, but we're still devastated.
ReplyDeleteAs I'm sitting at work (I work on an ambulance that's why I'm here so late) I'm trying not to cry while reading your blog. I lost my precious Zachariah to triploidy November 22, 2011. Seeing death everyday in my job and having to be the strong one all the time that's the role I took with the death of my precious little boy. It's hard on me and ry everyday to loose our first born son. What really kills me is when our beautiful 2 1/2 year old daughter pats my belly and says "baby" and tries to talk to him. It was the hardest thing to tell her "no there's no baby anymore, god needed Zachariah more then we did." it's nice to know we're not the only ones going through this. We were also blindsided by the triploidy diagnosis and told the best thing to do is terminate. God took Zachariah home a week later. I like you cannot wait to meet my precious baby and I think we can both feel some peace in knowing our babies are not suffering and have no disabilities where they are. They are as perfect as they appeared in our eyes not the medical aspect of it. Zachariah like your Whitney was perfect. <3 thank you for sharing your story.
ReplyDeleteI just found your site today. My son and daughter-in-law recently had their first child and while in the Neonatal Unit met a couple whose little girl was born with Triploidy. She's an amazing blessing and her parents are building wonderful memories with their precious treasure while she is with them. They have an older daughter who needs
ReplyDeleteprayers as there is no sufficient way for her
to understand all of this. God Bless.
Dear both,
ReplyDeleteI came across your page while researching a lecture on chromosome imbalances that I am giving to medical students (I'm a doctor who specialises in genetics). I am not sure what made me look at your page because I was looking for facts and figures but I am glad I did.
I am in awe of your faith, your love, your compassion. Your site made me cry, which is unusual, given what I see every day at the hospital. It reminded me of how good God is and reminded me to ask for his help in shouldering my very small burdens. It has inspired me to commit a random act of kindness- not sure what yet, but I'll let you know when I do it.
But more importantly it reminded me of what parents go through before, during and after they seem me and my colleagues and how it does not end with the end of a pregnancy or the death of a child.
Thank you for your lovely site in memory of your lovely daughter. May God continue to bless you.
Annie
This comment has been removed by a blog administrator.
ReplyDeleteHello, I came upon your site accidentally and I'm so glad that I did. Your story really touched me because, like others, I lost a child who had chromosomal triploidy. Mine was 14 years ago. Her name was Grace and she was a twin. Her brother Michael is an incredible blessing and joy in my life and will forever have an angel watching over him. He tells me to this day how much he wishes she were here for him. Your information was wonderful, so much more than I had available to me 14 years ago. Thank you for sharing your story...it helps even all these years later:)
ReplyDeleteThank you for sharing your story about Whitney's birth. We lost our first child, a little boy, in the 24th week of pregnancy. At the time (1979), it was called a miscarriage and I wasn't given the opportunity to hold him, or even see him. I am so glad that the medical industry know understands how important it is for parents to see and hold their baby and to say hello and goodbye. I don't think you realize also home much it helps people like me to be able to share in your experience. It helps to imagine what that time would have been like if we had had the time to hold our baby and have a funeral for him, to say goodbye properly.
ReplyDeleteI just found this blog and what an amazing story - thank you so much for posting your beautiful story for others to read and take comfort in.
ReplyDeleteI was pregnant with my first (and only) baby in 1997. At 17 weeks I had an amniocenteses test as a precautionary measure - I had no reason to believe anything was wrong.
I will never forget that day as long as I live, the Dr carrying out the procedure told me that all was not well and this was not a viable pregnancy. I was devastated to say the least, my husband passed out during the test, shocked by what the Dr was saying.
My husband & I went home and waited for the results which came 3 days later - our baby was a triploidy baby and the recommendation a termination as soon as possible. I agreed on the basis that the baby would not survive and that we should move forward as soon as possible and try again - a decision I deeply regret.
We were in Germany at the time (military people) and I was admitted to hospital at 18 weeks and given drugs to start contractions - they were insistent I had to give birth naturally rather than have a D&C.
Before the drugs were administered I was whisked off for a detailed ultrasound where I could see my baby moving and hear his incredibly strong heart beat - I was about to kill him, I felt awful and have never understood why the Drs did that - to what end other than their own curiosity!
It took around 18 hours for our baby boy to be born and it was very painful and slow at the end, they were about to take me into theatre for a D&C instead as things were not progressing quickly enough but then I asked to go to the toilet where my baby was born, not a pleasant experience alone in a toilet.
I was then taken away to clear the rest of my womb and the baby was taken away and they didn't let me see him.
After the surgery we asked to see our baby, despite being advised not to, and he was brought to us in a petri dish like some surgical procedure had just taken place. He looked very small with a very small tummy and large head but otherwise perfect. They did take a photo for us but other than that we were sent home, no comforting words no counselling, no suggestion we should name him, nothing.
I never conceived again and even tried IVF but eventually gave up and decided that it was not meant to be.
I have learned to cope but will NEVER get over the experience and will always regret not having had more children but also the fact that nobody acknowledges i di have a baby boy - not even my caring family really. I also deeply regret not having continued with the pregnancy - at least then I could have had our baby acknowledged as such (the only baby I ever had)and been treated perhaps with a little more humanity.
My husband didn't feel the need but secretly, I called him Thomas, my only baby.
I just though my story might help others to make the decision whether or not to terminate, termination wasn't the right choice for me.
Thank you for the inspiration. My darling daughter's baby girl just died in utero yesterday with triploidy and she is waiting to deliver. She was 6 months along. I live in Michigan, but am in Alabama where my daughter and son in law live . . just waitng, waiting waiting, while my heart breaks further. God bless you and Sean for this glorious tribute to your baby, Whitney. My granddaughter now joins her in Heaven.
ReplyDeleteThank you for sharing your story. I, too chose to blog to help myself cope with our triploidy tragedy. We chose to terminate through heavy hearts and tear filled eyes. It was the right choice for us and you're right...it's such a personal decision that each family has to make on their own. I am so sorry for your loss but admire your strength.
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